Well hey there, stranger.
I'm Sarah. I'm a twenty-six year old sushi addict, book-lover, orthodox Catholic, and mother of two. I started this blog because my kids are cute and say funny shit and, to be honest, I just have to write, because it's what I do. It's what I've always done. I'm currently living the dream as a stay-at-home mom and a freelance writer. I love making lists, organizing, reading, clipping coupons, marathoning TV on Netflix, writing, and dreaming about being a homeowner. This is a picture from when I was in college and like fifteen pounds lighter but WHATEVER.
This is my adorable husband, Lou. He's the kind of guy who doesn't say much, but when he does speak, he's the funniest guy in the room. We've been married since May 2010 but have been inseparable since April 2007. On any given Saturday night you can find us snuggled up on the couch watching Suze Orman and eating ice cream. And smooching. Lou moonlights as an illustrator and is crazy talented. (I'm not ashamed to say that, upon meeting him in college, I had a obsessive crush on him for like a year before I worked up the courage to even say hello. Because, just look at him. Isn't he dreamy?)
This is my first-born, June. My baby. My sweetest toddler. My little hellion. MY SPAWN. June is two and the funniest person I know. Like me, she suffers from Andy Kaufman syndrome, where she'd rather annoy the hell out of you than be ignored. Junebug loves to make silly faces, talk in weird voices, and tell elaborate stories -- anything to entertain. She likes counting pennies, watching Barney, drawing, and eating toast.
Henry is our eight-month-old who can't go five minutes without flashing a big, gummy smile. He's incredibly content and will hang out on the floor with his toys all day, if you let him (and I do). Henry is laid back, loves people, and always wants to be talked to, kissed, cuddled, and held. He's just now learning how to wave, and he lights up when you say his name. He's an absolute joy.
We learned at a routine ultrasound that Henry has a birth defect called Spina Bifida. Part of his spine failed to close in-utero, so he has some moderate physical challenges such as hydrocephalus, limited mobility, and clubbed feet (which are cuter than regular feet. REAL TALK). He has a lot of doctor appointments and we need to catheterize him a few times a day, but overall his medical needs don't really have a lot of bearing on our day-to-day lives. Essentially, he's a normal little boy with a few special needs sprinkled here and there. I'm ridiculously proud of him. My mission with this blog is to encourage other moms who've found themselves in Special Needs World, and to show them that having a child with a disability, while devastating, can be an extraordinary blessing. If your baby has been diagnosed with SB,you're not alone, and you're stronger than you think. And shoot me an e-mail if you need to talk.
Hey!
ReplyDeleteI read your Spina Bifida post and I must say, you where spot on.
I have a crazy two year old daughter, Olivia and another 8 month old daughter, Holly who has Spina bifida and Hydrocephalus like Henry. Small world!
Hopefully we can connect through this or facebook? I have made a page for Holly to keep her followers updated on her progress. If you would like to look its www.facebook.com/awarenessforholly
Thanks, speak soon x